Gillian Hall Sapia 4/15/25 Gillian Hall Sapia 4/15/25 Be Louder Than the Chaos: Why Now Is Not the Time to Pause Read More Gillian Hall Sapia 4/14/25 Gillian Hall Sapia 4/14/25 I Wrote the System Failure Report. Why Do I Still Have to Prove My Daughter’s Pain? Read More Gillian Hall Sapia 4/10/25 Gillian Hall Sapia 4/10/25 Through the Noise: Rare Disease Still Deserves Equity Read More Gillian Hall Sapia 4/9/25 Gillian Hall Sapia 4/9/25 This Isn’t Baby Formula—It’s Lifesaving Medicine: How Tariffs and Supply Chain Failures Endanger Kids with Galactosemia Read More Gillian Hall Sapia 4/6/25 Gillian Hall Sapia 4/6/25 Not Just Numbers: The Human Cost of Delayed Rare Disease Therapies Read More Gillian Hall Sapia 4/5/25 Gillian Hall Sapia 4/5/25 Federal Funding Fights: How Lawsuits Are Shaping NIH, FDA, and CMS Futures Read More Gillian Hall Sapia 4/4/25 Gillian Hall Sapia 4/4/25 System Failure: $7.8 Million per Galactosmeia Patient in Preventable Burden Read More Gillian Hall Sapia 4/1/25 Gillian Hall Sapia 4/1/25 The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore Read More Gillian Hall Sapia 3/22/25 Gillian Hall Sapia 3/22/25 How to Contact Congress staffers: Read More Gillian Hall Sapia 3/21/25 Gillian Hall Sapia 3/21/25 Fun Advocacy Ask: Name a Baby Zebra After a Rare Disease Warrior! Read More Gillian Hall Sapia 3/21/25 Gillian Hall Sapia 3/21/25 New Year, Same Fight: Why 2025 Demands More Than Hope Read More Gillian Hall Sapia 3/11/19 Gillian Hall Sapia 3/11/19 Ultra Rare It all begins with an idea. Read More
Gillian Hall Sapia 4/15/25 Gillian Hall Sapia 4/15/25 Be Louder Than the Chaos: Why Now Is Not the Time to Pause Read More
Gillian Hall Sapia 4/14/25 Gillian Hall Sapia 4/14/25 I Wrote the System Failure Report. Why Do I Still Have to Prove My Daughter’s Pain? Read More
Gillian Hall Sapia 4/10/25 Gillian Hall Sapia 4/10/25 Through the Noise: Rare Disease Still Deserves Equity Read More
Gillian Hall Sapia 4/9/25 Gillian Hall Sapia 4/9/25 This Isn’t Baby Formula—It’s Lifesaving Medicine: How Tariffs and Supply Chain Failures Endanger Kids with Galactosemia Read More
Gillian Hall Sapia 4/6/25 Gillian Hall Sapia 4/6/25 Not Just Numbers: The Human Cost of Delayed Rare Disease Therapies Read More
Gillian Hall Sapia 4/5/25 Gillian Hall Sapia 4/5/25 Federal Funding Fights: How Lawsuits Are Shaping NIH, FDA, and CMS Futures Read More
Gillian Hall Sapia 4/4/25 Gillian Hall Sapia 4/4/25 System Failure: $7.8 Million per Galactosmeia Patient in Preventable Burden Read More
Gillian Hall Sapia 4/1/25 Gillian Hall Sapia 4/1/25 The $2.5 Trillion Math Problem That Rare Disease Families Can’t Afford to Ignore Read More
Gillian Hall Sapia 3/21/25 Gillian Hall Sapia 3/21/25 Fun Advocacy Ask: Name a Baby Zebra After a Rare Disease Warrior! Read More
Gillian Hall Sapia 3/21/25 Gillian Hall Sapia 3/21/25 New Year, Same Fight: Why 2025 Demands More Than Hope Read More
Gillian Hall Sapia 3/11/19 Gillian Hall Sapia 3/11/19 Ultra Rare It all begins with an idea. Read More
