Rare and Relentless is a platform dedicated to amplifying the voices of patients, parents, and advocates navigating the uncharted terrain of rare disease. Our mission is to expose systemic failures, challenge outdated policies, and fight for equitable care—relentlessly.

We believe that lived experience is expertise, that data and storytelling go hand-in-hand, and that no disease is too rare to matter. From policy breakdowns to personal breakthroughs, we are here to speak truth, demand change, and never stop pushing for the treatment, dignity, and justice every rare disease family deserves.